Ever wonder what it takes a special needs family to get just ONE usable picture?
12/9/11
11/30/11
Tis the Season
Christmas?!? My son doesn't know his own name half the time but somewhere along the way he's learned the word Christmas! We put up our trees on Monday while he was at school and the first thing he said when he walked in the door was, "Christmas", bless his little heart. Big change from last year... Last year was what I like to call the Great Christmas Standoff of 2010; a battle of wills between him and I regarding the Christmas tree. I preferred the decorations ON the tree and he felt the decorations would be better off lying around the floor of his bedroom. I'd put them up, he'd take them down. He also launched a one toddler -Free the Snowmen! revolution. Apparently I was the big oppressor of his "people" and my son felt it was his duty to reunite the snowman ornaments with their long lost relatives the snowman figurines, towels, stuffed snowmen and snowmen stockings who had been so callously scattered across the land (our house) by yours truly.
6/17/11
BAM! POW! THWACK!
So a four year old walks into a bar....
Just kidding!
Not really, he actually walked into a bar...
at the park...
TWICE!
Every time Zander grows he has to re-learn about the space around him. It's hard to explain but it's as if he is unaware of anything above eye level unless he is looking up and actually sees it. It's really bad when he wears a baseball hat in fact both times he walked into a beam at the park he was wearing one and couldn't see the approaching beam above the brim.
It's like something out of a dumb comedy. You could hear the loud thud from across the playground and on one hand the visual was funny but on the other hand as a mom you're freaking out because how many blows to the head can one person take? You hear all the time how a person hits their head once and then dies 2 days later from it and here's my boy, "Captain Steel Head".
Just kidding!
Not really, he actually walked into a bar...
at the park...
TWICE!
Every time Zander grows he has to re-learn about the space around him. It's hard to explain but it's as if he is unaware of anything above eye level unless he is looking up and actually sees it. It's really bad when he wears a baseball hat in fact both times he walked into a beam at the park he was wearing one and couldn't see the approaching beam above the brim.
It's like something out of a dumb comedy. You could hear the loud thud from across the playground and on one hand the visual was funny but on the other hand as a mom you're freaking out because how many blows to the head can one person take? You hear all the time how a person hits their head once and then dies 2 days later from it and here's my boy, "Captain Steel Head".
5/20/11
roller coaster
Why can't nutritionists and doctors be consistent? One person tells you to do one thing and the next person you speak to tells you the exact opposite and in the meantime your kid continues to suffer. If people only knew how much money we've wasted on other peoples theories to help our son.... sigh.
Currently we are fighting a massive yeast takeover in Zander's poor little body.
Currently we are fighting a massive yeast takeover in Zander's poor little body.
4/17/11
Breath, Balance, Laugh
Cheers to March and April...
1. Meet with school district to start Z's IEP and check out a few autism pre-k strategies classes
2. Tell school district special ed coordinator we want to potty train Z before he starts a class.
3. Get laughed at by school district special ed coordinator for wanting to potty train Z before he starts school.
1. Meet with school district to start Z's IEP and check out a few autism pre-k strategies classes
2. Tell school district special ed coordinator we want to potty train Z before he starts a class.
3. Get laughed at by school district special ed coordinator for wanting to potty train Z before he starts school.
3/20/11
Bad Square, Bad, Bad Square!!!
So I have to ask:
Is it really that hard to understand that Z's "reality" is different from what most of us consider the "real world" ? Is it too much to ask people to try and understand that no matter how much you try he will never see the same thing you and I are seeing?
We're not asking for people to bend over backwards for him. We're not asking for people to let him take the easy way out. Just a little extra patience and compassion because as frustrated as you may be with the fact that he can't do the simplest of things; think about the fact that he's the one who knows exactly what he wants but can't get the damn words to come out of his mouth. Can you imagine?
Let's go there.... imagine that you go out to dinner with your friends or family and are having a great time and the next thing you know you are waking up to the bright lights of a hospital room. Imagine there are people standing over you talking to you but they sound like they are speaking to you under water.
Is it really that hard to understand that Z's "reality" is different from what most of us consider the "real world" ? Is it too much to ask people to try and understand that no matter how much you try he will never see the same thing you and I are seeing?
We're not asking for people to bend over backwards for him. We're not asking for people to let him take the easy way out. Just a little extra patience and compassion because as frustrated as you may be with the fact that he can't do the simplest of things; think about the fact that he's the one who knows exactly what he wants but can't get the damn words to come out of his mouth. Can you imagine?
Let's go there.... imagine that you go out to dinner with your friends or family and are having a great time and the next thing you know you are waking up to the bright lights of a hospital room. Imagine there are people standing over you talking to you but they sound like they are speaking to you under water.
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