12/16/12

The Sheeple have spoken... Baa


I’ve been sitting back the last couple days trying as so many are to make sense of recent violent events from across our country.  I’ve seen the sheeple of America do what we do best… look for blame instead of looking inside ourselves for actual positive solutions.  “Baa Baa Gun Control!” said the first sheep.  “Baa Baa Autism!” said the second.  “Baa Baa give teachers’ guns!” said the third.  “Baa Baa Mental illness!” said the next.  “Baa Baa Medication!” said another.  “Baa Baa Bad Parenting!”  “Baa Baa Society”, and so on. 

I was hoping the sensationalist media frenzy would die down a little but since that’s obviously not going to happen and my facebook is still in a finger pointing typhoon… I feel compelled to say something.

Yes,  I worry about when Z becomes a teenager and hormones kick in… he’s only 5 and he’s already almost too much for me to handle physically at times.  His moments of protest and anger are fleeting most days now and to be fair to him they are often justified in situations where any child would protest.  Mostly anymore if he gets upset, he clenches his teeth, takes a big breath thinks for a minute till he realizes I’m not going to change my stance and then moves on to something else but THERE ARE DAYS when he really wants something or really doesn’t feel like doing something and it pisses him off and hits himself in the head and chest, sometimes dropping to floor and flailing or refusing to move, yelling while covering his ears and even occasionally launching himself onto me with a painful head-butt to the nose & chest or a slap and scratch to my neck.

 I look at Z’s behavioral issues and I remember how bad and scary they were before we started POSITIVE BEHAVIORAL THERAPY and I am so proud of how far he has come and know how far he still has to go and I still worry about the future, how can I not?

Before Autism entered our lives I moved through life with the knowledge that there were special needs people among us but again, let’s be honest here… I never really gave it any thought other than to think things like, ‘gosh that’s so sad’. 

I always just assumed that even though some people were different that they were most likely being taken care of.  I assumed that there were all sorts of resources and programs to help them out; ways for them to access health care, behavioral care, living spaces, education. 

I didn’t realize the horrifying number of special people that end up homeless from lack of resources and lack of proper care.  I didn’t realize that our country’s solution is to shove them into the prison system instead of a therapeutic living situation or hospital because funding for helpful places is not even close to where it should be. 

Special needs communities have been crying for help for DECADES!  Our loved ones need a safe and nurturing place in society.

It’s not our problem though as a society right?   It’s not our problem that is until something tragic happens, look… I don’t judge that mentality because that’s exactly what happened to me… I was totally blind until I was forced to see, but YOU all can learn from me. 

Our families… our AMERICAN FAMILIES need HELP accessing AFFORDABLE treatments and we need options for our older children and adults!  Don’t read this and tell me “Good job Brandi!” or “Proud of you Brandi!”  SHOW ME!  Show me by signing petitions to help us with legislation,  show me by reaching out to a special needs person or family in your town getting not just you but your kids involved within your own community even if it’s as simple as donating your coffee money one day a month to a different special needs organization.  Let’s all take a little responsibility for teaching, fostering and encouraging tolerance and compassion in our lives to both typical and special needs children. 

If you think for a second that I won’t have to teach Z how to be tolerant and patient and compassionate with the ignorance that surrounds him on this earth you would be dead wrong.

YOU CAN open your hearts.  You can make a difference from within the confines of your own busy life and your own problems.  You don’t have to be blind like I was, we as a society cannot afford to continue ignoring the special needs community, not at the rate that conditions like Autism keep rising! Five years ago we didn’t know anyone dealing with it and now almost everyone we know, knows someone else, a cousin, a neighbor, a client who is touched by Autism or some other special needs condition… that’s insane!

 

You know its crazy… I can remember seeing special needs children at school and just assuming they were happy and ok and learning to the best of their ability… I never bothered to actually find out which is something I honestly hate myself for now. 

I now understand the MONUMENTAL difference just one act of kindness or actually befriending one of those kids could have made in their lives and I am so embarrassed that I didn’t reach out.

I can see different sides to a lot of the statements that have been circumventing the internet the last few days.  I’m a MT girl and heck yeah I know how to shoot, not as good as my older sis but enough to put food on my table if I had to, so I personally don’t have issues with people owning guns.  I was raised to respect them and respect their purpose and function in life.

 I CHOOSE NOT to have any guns in our home because I RECOGNIZE that my child has no concept of safety or consequences.  (YOU’RE WELCOME AMERICA) Maybe someday I’ll be able to help him understand; then again maybe it’ll always be this way, but why even tempt fate?

 I know if the person applying for a permit has had any documented history of mental illness that they will not be approved but maybe that should be extended to anyone living in the household… if you have a loved one living in your home diagnosed with any sort of personality/behavioral disorder no matter the age, then sorry no gun for you? I understand that’s not really fair t but maybe it’s best for society in the long run?  Don’t shoot me.. I’m just thinking out loud.

Also, if we’re going to look at putting guns into the hands of our teachers… Oh hell, why don’t we take it a step further and just change P.E. class to Assassin Combat Training for the kids too?  I mean really America is that the best solution you can come up with?  Plenty of our schools already have metal detectors why not expand on that a little bit.  Why don’t we install them in the first set of doors to the schools entrance with turn-styles and the doors only open if the detector doesn’t go off?  Again, it’s just an idea, maybe it’s a dumb one but at least I’m thinking and not pointing fingers.

I am perplexed by the fact that we couldn’t even have one day where we just grieved as a nation without all the finger pointing and the fact that we couldn’t even have one day where the media leaches weren’t so desperate for their story that they sunk so low as to interview traumatized children in hopes of ratings.  I have to be honest… I woke up in the middle of the night Friday and went and curled up at the foot of my son’s bed for an hour just listening to him snore, quiet tears streaming down my cheeks unsure of what his/our future holds and thinking how grateful and lucky I am to have him here, Autism and all!

I don’t know what the answer is:  More Guns/Less Guns/Assassin Ninja toddlers & heat packing teachers/More medication/Less medication/More compassion & inclusion/Less isolation….?????  I am just as lost as everyone else!

Here is my vow to my fellow Americans:  I will continue to push MY son everyday to help him learn the fundamentals of making right and wrong choices, and more importantly learn the concept of consequences. 

I will continue to work every day to find ways to empower him to self regulate his emotions and behavior and to find outlets for him to cope with his sensory issues and to release his emotions in a positive constructive and hopefully productive way.  I’m doing the best that I can with the resources I have to the point of exhaustion and he’s only 5… I can’t possibly promise any more than that and if that’s not good enough then all I can say is, “Baa Baa Baa Baa”.
 

10/11/12

Birthday to me...

Some moments with Autism can be bittersweet.....


 
 
Give your little ones an extra squeeze today from Aunt B :)


9/26/12

Hey nony nony

I'm tired.....................................

Those two words do not always come from a negative place. It's OK that I'm tired; I've earned it. The dark circles under my eyes and lines on my forehead are permanent damage from my son only sleeping  2-4 hours each night for the first 4 and a half years of his life.

People think that's an exaggeration but sadly it's not, it was very real or rather surreal and often foggy dreamlike. There are things I can't recall at all and arguments that I'm sure my husband wishes he couldn't, lol. I was literally not in my right frame of mind, how could I be?

We do what we have to do to take care of our kids.

Anything that sort of goes against the "norm" of society, or against what we've always believed something should be can be hard. So what's hard for me is hard for me and what's hard for someone else is hard for them. I think about the parents out there that are worried their child isn't going to live and here Zander is full of life. I think about the parents that have to deal with feeding tubes, wheel chairs, physical abnormalities, seizures, asthma, chemotherapy, dialysis and THOSE PARENTS AMAZE ME and INSPIRE ME!

8/22/12

Boo Freakin Do Da Hoo

So I've been sitting on this for a while now in hopes that I would be able to keep myself from sounding like a super angry Bee-yatch but who are we kidding right? Lol they could put my face on the Angry Birds app and call it Angry Brandi some days for sure.  Ha ha can you see my giant stress crevice of a forehead flying across the screen knocking down various shaped puzzle pieces?! 

I just can't seem to let this one go and it's bothering me so much that I'm not sleeping. 

My son is NOT a CASH COW because he has Autism.  People think that because a lot of Autism Families receive funding that it doesn't matter what they charge to work with our kids because it's not really our money..

7/31/12

Glue Sticks & Microchips

Z and I are out in the back yard a few weeks ago and I see a baby bird struggling in the yard so I go to put it back up in it's nest which is up on this back deck/bench area thingy.  I turn around and there's NO Z ANY WHERE!  He's not in the grass or on the side of the house, and the door to the house is still closed. Finally after a heartstopping 20 seconds (felt like 20 minutes); I see a flash of orange runing along the OUTSIDE of the fence!  I bolt down the deck stairs, down the backyard hill to discover that after three years in this house, he's figured out how to unlatch the fence! 

I am sure I looked like a crazed lunatic screeching after him through the neighborhood.  I can only imagine what the neighbors thought :(  I chased him into and out of the neighbors garage, "Hi Chris!" and into and out of the street, up the block, in and out of several yards before I finally got my hands on him. 

7/6/12

play-dates, what if's, and Zpong OH MY!

Yay! Zander had his first official playdate today with someone who isn't related to him, one of his classmates from school, Tristan! It went pretty good. It's hard to say playdate because it's not what you'd probably expect, there's not a lot of direct interaction but there was definitely some side by side playing here and there which for my son is AWESOME! Even a year ago a play date would have consisted of my son immediately walking as far away from the other child as possible or asking to go home. Now it's more like what you see a 2 or 3 year old do, small observations, interactions, little imitations. But holy cow balls it's progress and you all know that in Autism any progress is a great thing!

4/13/12

Just My Opinion



I would never begrudge any family dealing with disabilities for trying to bring in extra cash to help offset the financial devastation that can occur when trying to care for their loved one or someone creating a project who's true goal is to help educate and spread awareness! I don't know about you all but with me a little honesty goes a long way!

2/20/12

Five by Five

"Present"!  That's the first word out of my sons mouth at 6:30a.m the morning after his 5th birthday party. 

Happy he's communicating... not so happy he wants a present at 6:30 in the morning!
All in all I think he had a pretty good birthday. We went with a class only party this year since it was his first year in "school".

We've been blessed with a wonderful group of parents in the class and it was fun to see them in that environment away from school playing with their little ones. We felt bad for excluding our friends and neighbors but there's more than one special needs kid in Z's class and we wanted to make sure all the families felt comfortable coming out and didn't want them to shy away because they didn't want to deal with a room full of strangers. I know how anxious we get when we take Z to a party full of people we don't know.

We opted to cut the party short and take presents home because it takes Zander HOURS to open presents. I hope it didn't feel like, "Thanks for the presents... now get out!" He just insists on playing with each one for a while before he will even consider opening the next.

We could also feel the usual balloon-ageddon meltdown coming as soon as we hit the party room and our son zeroed in on the balloons.

(In my best Seinfeld voice)..." BALLOONS!" (Newman!)

Who would have thought that my biggest nemesis in life would be stupid freaking birthday balloons!