1/22/13

Just me and my apparent pea brain...

Can I just say that I am grateful Z landed in the pre-k/K class he did.  I think if our first "school" experience had been with anyone else Z would be home schooled already!  His teacher is laid back and genuine, he doesn't sugar coat things, he's straight forward and most importantly... he doesn't talk to us as if we just walked down out of the mountains from some unknown commune and couldn't possibly grasp what Autism is or what our son is or is not capable of doing. 

Honestly I do not know how I'm going to survive 18+ years of IEP's where kids 10 years younger than me say things like, "You know kids with Autism are all different." and "You really have to celebrate the small successes and you can't take even the smallest victories for granted".. (Can you all see me sitting there with my fingers starting to tap the table to distract myself from saying something completely innapropriate while my husband stares a hole in the floor trying to do the same thing.) I know, I know, I know... they mean well and they are just doing their job and I am sure that there probably are parents out there that just don't understand the situation but man, they just don't realize how patronizing it feels to a parent who is involved. I may not know more about child psychology or behavior but I KNOW MY CHILD better than anyone ever will. 

Honestly, (and I swear this is not meant bitchy) we don't care about all the mumbo jumbo or the observations about our child from someone who has seen him 1 day in his entire life... just cut to the chase and tell us what services you think he does or does not qualify for.  Tell us what you would like to add or change in his services, let us say what we need to say and then let us be on our way because WE'RE TIRED and running on fumes and if you make us sit for too long we may just take a nap right there in front of you.

So just for any of my friends that work with Special Needs children and their parents in any capacity try to remember that WE ACTUALLY LIVE with Special Needs 24/7, we eat, breath, sleep it.   It's the first thing on our mind in the morning and the last thing before we fall asleep at night... if we get to fall asleep!  Take a second to find out how involved the parents actually are first before you get into the logistics of your reports.  Some parents may need the hand holding and the "pep talk", but to others it just might be down right annoying, even offensive.

1/16/13

Zander's Song

For the past 4 years we've heard so many times how much people wish they could help us help Z out; unfortunately there really hasn't been a whole lot anyone could do untill now...

Zander is about to lose a huge chunk of his therapy funding because he is turning 6.  This decision is based soley on an age scale as opposed to a progress scale.  Z has made and continues to make amazing progress and the idea that he is probably going to lose several therapy hours a month is heartbreaking to us.

For anyone who has ever wanted to help here is your chance:

Eric has written a song with his friend Erika inspired by Zander & Autism.  It's the song a lot of you have heard on our facebook pages before for free, only now it's up on both i-tunes and amazon for .99cents. 

https://itunes.apple.com/us/album/reach-for-you-feat.-erika/id592496588

http://www.amazon.com/Reach-You-feat-Erika-Davidson/dp/B00B0EOYC0/ref=sr_1_1?ie=UTF8&qid=1358235922&sr=8-1&keywords=eric+stangeland

About .70cents from each download comes our way and would go back into Z's therapy fund to help us offset this dramatic drop in therapy coverage.  Download the song one time and ask others to do the same.  You may not think that your $1 can make a difference but if 500 people download the song, that almost covers an entire month for the one tutor that we may otherwise be losing. 

This is not easy for us to ask but it's a beautiful song, they worked hard on it and it's ONE DOLLAR, one time.  I've met multiple special needs families over the last few years who put a DONATE button on everything they can.... we just have never felt right about doing that.  Eric and I really wanted to make sure people receive something for their money, so we say DOWNLOAD don't donate!  You'll receive my husband and Erika's hearts through the gift of music and know you've had a hand in Zander's future and of course there's always my love and gratitude!

Here is the youtube video we made for the song, please enjoy it, and if you see it up on either of our facebook pages don't just click like... click share and ask your friends to do the same.  I see people sharing videos and pictures of all sorts of random sensless things could it really hurt to share something heartfelt that means the world to someone?